To be diagnosed with a condition that the majority of us have never heard is a daunting experience; however information and support (although not always easy to find) is available. 

Within this Section of the site we will endeavour to provide patient friendly information from a wide range of sources.

We have collated sources of information and support  that we believe may be of interest to those whose lives have been affected by the condition.

Whether you are looking for information on arteriovenous malformations or just wondering whether to take a holiday; you’ll find something in this section to help.