AVM Support UK believes that it is important to share our experiences.  Not only does it enable those affected to share many of the feelings they are finding difficult to talk about with loved ones but in addition it can have encouraging consequences on others who find themselves in a similar situation.

We welcome carers, family and friends to add their experiences; in fact anyone whose life has been affected when someone they love is diagnosed as having an AVM. This page is waiting for your story.

21	Positve AVM News - Elizabeth Walker  submitted on  Tue 29th Dec 2009
22	1/3 of my brain taken by AVM - 25 yrs old - first - George Nightingale  submitted on  Sat 26th Dec 2009
23	My AVM - Vicki Daley  submitted on  Mon 21st Dec 2009
24	Recently Diagnosed with Brain AVM - Erin  submitted on  Sat 19th Dec 2009
25	Never, ever give up - Mac McCowan  submitted on  Fri 11th Dec 2009
26	Decisions...decisions - Austen  submitted on  Fri 27th Nov 2009
27	Just Washing My Hair - Claire  updated on Thu 26th Nov 2009
28	AVM under skin outside skull, not in brain. - Angel  submitted on  Tue 24th Nov 2009
29	AVM my story - Linda  submitted on  Sun 22nd Nov 2009
30	Going for a 3rd GK...? Risk of cysts? - Claire  submitted on  Thu 5th Nov 2009
31	Left thigh AVM - Pia Hahn  submitted on  Thu 5th Nov 2009
32	Brain AVM - Sarah  submitted on  Wed 28th Oct 2009
33	Haemorrhage at 4 months pregnant - Rachel Wright  submitted on  Sun 25th Oct 2009
34	Tinitus and AVM - Jacky Smith  submitted on  Sun 18th Oct 2009
35	AVM in arm - Nicola Hills  submitted on  Tue 13th Oct 2009
36	Recently had a hemorrhage - Zac  submitted on  Sat 3rd Oct 2009
37	Jaime’s AVM - Jaime Burke  submitted on  Fri 2nd Oct 2009
38	Post op complications - Angela Stones  submitted on  Tue 29th Sep 2009
39	Advice on post avm falls please - Jane Webb  submitted on  Sun 27th Sep 2009
40	Diagnosed with Brain AVM - Mary  submitted on  Tue 25th Aug 2009