Often those whose lives are affected by the condition feel a compelling need to talk to others who have been or are going through a similar experience.

AVM Support UK offer a number of services in which those affected can begin to address the feelings of isolation that can accompany being diagnosed with a rare condition. 

These include:

• An online meeting area - in which registered users meet on a twice weekly basis.

• The opportunity to network with others through our guestbook.

• A forum in which registered AVM Friends users can communicate with others.

• The 'Our Experiences' section of the website enables users to share their own experiences with others.  Many narrative authors offer an email address so they can be contacted by other users.

For further details on how to use our services, please us the links to 'related pages' shown below.